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CHROMOSOME 22 CENTRAL We
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connecting! C22C is a parent driven group with more than 1000 members in 45+ countries. |
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Join our main support list MESSAGE BOARDS FAMILY STORIESC22C INTERNATIONAL PARENT CONTACTS LEARN ABOUT
NEWSLETTERS DOWNLOAD A .PDF COPY OF OUR BROCHURE - SPREAD THE WORD! Chromosome 22 Central Inc.
is a registered Canadian Non-Profit Organization |
BOOKS
Educating Children with
Velocardiofacial Syndrome, by Donna Cutler-Landsman
Published April 2007 - Available through Plural Publishing Velo-cardio-facial Syndrome: A Model for Understanding Microdeletion Disorders
Editor: Kieran
Murphy - published June 2005.
Available through Chapters.ca in Canada and Cambridge.org in the US Stephanie's Story - by Kathleen Wermuth Raising a child with multiple disabilities is an overwhelming ordeal, let alone the physical and emotional strain that comes with it. Stephanie's Story is the personal narrative of one parent's emotional journey in caring and loving for her daughter, born with a rare genetic birth defect-22Q13 Deletion Syndrome-which has left her unable to walk or speak, and medically fragile. Everyday life in itself is not typical. The story shows what they endure, and what most people can't even comprehend is the multitude of medications, doctors, therapies and the specialized equipment, all to make life for their daughter as "typical" as possible. A love knows no handicaps, for its unconditional. For a mother and a father, they only know that a child who requires so much has given them so much more in return. Beyond the heartaches, the hardships, and the handicap, they realize that they are truly blessed by a very special child. ISBN: 1-4137-2715-8 (this is the books serial number) it is selling for $16.95 and can be ordered from Publish America (www.publishamerica.com) Barnes & Noble (www.barnesandnoble.com) as well as on Amazon.com. If anyone wishes to have a signed copy they can order the book directly from the author, although shipment may take a little longer. The price is still $16.95 plus $3.00 s&h. website: http://eponaponiesart.faithweb.com VCFS -
Footprints of Hope, by Raymond Tanner of Australia. Also NEW! MISSING GENETIC PIECES: Strategies for Living with VCFS, The Chromosome 22q11 Deletion", was written by Ms. Sherry Gomez of Arizona. Check out the VCFSEF website for details to order. "Therapy techniques for Cleft Palate Speech and Related Disorders" Golding-Kushner, 2001, Singular (Delmar) Publishing. It is available from amazon.com and barnesandnoble.com or directly from the publisher (www.delmarlearning.com). There is a chapter devoted to VCFS, but the whole book is about how to correct articulation problems. |
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Use Paypal to pay MEMBERSHIP DUES, or for Canadian or International Donations ONLY.USA members for DONATIONS Please forward a cheque or money order to our US HEAD OFFICE so that you can obtain a tax receipt.
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Head Office - for ALL
inquiries: Chromosome 22 Central, c/o Stephanie St-Pierre,
237 Kent Avenue, Timmins, Ontario, Canada P4N 3C2 US
Head Office - donations only: Chromosome 22 Central, c/o
Murney Rinholm,
7108 Partinwood Drive,
Fuquay-Varina, North Carolina, 27526 USA,
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