It is almost 11months later, and Olivia has finally been diagnosed with CES, however we are still waiting for specific bloodwork to determine what genes are affected. She is the strongest and bravest little girl we have ever met. She has spent almost her first whole year undergoing so many tests, that sometimes I start to lose count. She is very lucky that she has no heart defects or abnormalities. However, she only has one kidney, which is very enlarged, stage 3 renal reflux, cat eye pupils, possible colobomas (eye doctor is not sure because of how her pupils are), misplaced rectum, and only a slight developmental delay. She has a very hard time pooping because of her rectum problem, and now we are being referred to an endocrinologist because the pediatrician says Olivia has failure to thrive. She can't eat enough to put on weight.

Overall, she is very healthy and strong willed. She is just starting to crawl, and is starting to pull herself up.

I start to cry sometimes, just because of thinking about how much she has and is continuing to endure. She is such a beautiful gift from God. She is almost 11 months old, and it is she who has taught all of us that anything is possible. She is the one that gives us strength and teaches us to believe. She is so brave. Sometimes I feel like crying, but I am crying mostly because I am so grateful and thankful that she has come into our lives. She, and every other child affected with this syndrome, are extremely beautiful and precious. And I believe that they will affect everyone they meet in their lives, and teach people to look past the surface and dig deep into their hearts to find what really matters to us all... compassion, love, and family.