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CHROMOSOME 22 CENTRAL We
are
all
about
connecting! C22C is a parent driven group with more than 1000 members in 45+ countries. |
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HOME | EVENTS | RESEARCH | NEWS | LINKS | PRIVACY POLICY | DISCLAIMER |
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Join our main support list MESSAGE BOARDS FAMILY STORIESC22C INTERNATIONAL PARENT CONTACTS LEARN ABOUT
NEWSLETTERS DOWNLOAD A .PDF COPY OF OUR BROCHURE - SPREAD THE WORD! Chromosome 22 Central Inc.
is a registered Canadian Non-Profit Organization |
ABOUT CHROMOSOME 22 AND THE PURPOSE OF OUR GROUP This site is for reference only. Please contact your own medical professionals for advice. Owner is not a medical professional. We do not provide medical advice, only basic information, and strongly urge families to discuss all matters with either a genetics counselor or their doctors, even information that is shared by with you by other parents. What is best for one child may not be best for another. Chromosome 22 is the 2nd smallest autosome. (Autosome means a chromosome that is not a sex chromosome.) It is considered to be very gene rich, with approx. 679+ genes. It is the first chromosome to be completely sequenced in the Human Genome Project. An announcement that was released in the Journal Nature, on December 2nd, 1999. Did you know that one of the most common chromosome deletion disorders, 22q11 deletion, is found in approximately 1 out of 2000-4000 people? Did you know that trisomy 22 is the second most common cause of miscarriages? Can you imagine what
it feels like to learn your child has something Our group currently represents approximately 1000 families with family members affected by chromosome 22 disorders from more than 40 countries including Canada, USA, England, South Africa, Portugal, Sweden, Denmark, New Zealand, France, Germany, Australia, Ireland, South America, Netherlands, Argentina, Scotland, France, Japan, India, Singapore, Italy, Chile, and more! Some children have very unique, one-of-a-kind disorders involving chromosome 22 and may not be able to find another family "exactly" the same. No matter what exact disorder our children face, we as parents all share a common goal of discovering information in order to educate ourselves and others about our children and the challenges they face. That is what this group is all about. Started in 1997, with a handful of trisomy 22 families, our group has grown and expanded to encompass all families world wide who face issues involving chromosome 22. Chromosome 22 Central is a non-profit organization and registered charity in Canada, and a Corporation with non-profit status in the USA. Our group is run solely by volunteers. We do not receive any grants or financial assistance, other than the generosity of our members. When a new family contacts us, we provide them with current information, offer support and connect them with others who thought they "were the only ones". We host annual events so families have the unique opportunity of meeting one another. And we spend a fortune in postage! Donating to our group, even a small amount, will go a long way to help families who have been suddenly forced into a world unfamiliar to them. It is our group's mission to promote world-wide awareness of disorders involving chromosome 22, through mailings to hospitals, our website, our newsletter, our conferences, and other activities. It is our hope that one day we will grow to the point where we can fund research and provide financial assistance to families in crisis. Our group does not have all the answers, but what we can do is help families find each other, and basic information (if it exists!). We are a registered non profit organization in Canada, and a registered US Corporation. |
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Use Paypal to pay MEMBERSHIP DUES, or for Canadian or International Donations ONLY.USA members for DONATIONS Please forward a cheque or money order to our US HEAD OFFICE so that you can obtain a tax receipt.
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Head Office - for ALL
inquiries: Chromosome 22 Central, c/o Stephanie St-Pierre,
237 Kent Avenue, Timmins, Ontario, Canada P4N 3C2 US
Head Office - donations only: Chromosome 22 Central, c/o
Murney Rinholm,
7108 Partinwood Drive,
Fuquay-Varina, North Carolina, 27526 USA,
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