CHROMOSOME 22 CENTRAL 
SUPPORT FOR ALL CHROMOSOME 22 RELATED DISORDERS 

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C22C is a parent driven group with more than 1000 members in 45+ countries. 

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CLICK HERE FOR MORE E-MAIL LISTS (choose from, c22cnews only, infant/pregnancy loss, caregivers of adults, Spanish

MESSAGE BOARDS

• Trisomy 22 and Rare C22 Disorders

• Cat Eye Syndrome 

• 22q Deletions

FACEBOOK GROUP

MEMBERSHIP FORM

C22C INTERNATIONAL PARENT CONTACTS

LEARN ABOUT

• Chromosome 22 Central

• 22q11 Deletion Syndrome (DiGeorge Syndrome, Velocardiofacial Syndrome)

• Microduplication 22q11 Syndrome

• The 11/22 Translocation (Emanuel Syndrome, partial trisomy 11/22)

• 22q13 Deletion Syndrome (Phelan-McDermid Syndrome)

• Cat Eye Syndrome

• Complete or Full Trisomy 22

• Mosaic Trisomy 22

• Chromosome 22 Ring

• Monosomy 22 Mosaicism 

• Unique Chromosome 22 Disorders

• Books

 NEWSLETTERS

• NOVEMBER 2006
• FEBRUARY 2007 
• MAY 2007 
• SEPTEMBER 2007
• DECEMBER 2007 
• MAY 2008

DOWNLOAD A .PDF COPY OF OUR BROCHURE - SPREAD THE WORD!

Chromosome 22 Central Inc. is a registered Canadian Non-Profit Organization 
and Registered Charity BN# 86009 3665 RR0001, and a Registered US Corporation with Non-Profit Status

CHROMOSOME SPECIFIC: 
(HUGO sites offer links to related chromosome support groups)

• HUGO Chromosome 1

• HUGO Chromosome 2

• Hugo Chromosome 3

• Chromosome 3 Deletion Registry

• 4p- Support Group

• HUGO chromosome 4

• Cri Du Chat England

• HUGO Chromosome 5

• HUGO Chromosome 6

• Chromosome 7 Info

• HUGO Chromosome 7

• HUGO Chromosome 8

• Trisomy 9 International Support Group

• HUGO Chromosome 9

• Trisomy 10 page

• HUGO Chromosome 10

• 11Q Europe

• 11Q Research & Resource Group  

• WAGR Syndrome/Aniridia network
  "Reaching Out" newsletter
  c/o Annie Prusakiewicz
  2063 Regina
  Lincoln Park,  MI  48146
  Email: TheMooZoo@aol.com

• HUGO Chromosome 12

• HUGO Chromosome 13

• Support organization for Trisomy 13, 18 and Related Disorders

• SOFT (Support Org for Trisomies 13, 18 & Related Disorders) Western Australia, e-mail sqonk@multiline.com.au

• HUGO Chromosome 14

• HUGO Chromosome 15

• Disorders of Chromosome 16 Foundation

• HUGO Chromosome 16

• HUGO Chromosome 17

• Chromosome 18 Registry & Research Society

• HUGO Chromosome 18

• HUGO Chromosome 19

• HUGO Chromosome 20

• Ring Chromosome 20 Foundation

• HUGO Chromosome 21

• Down Syndrome (Trisomy 21) Info

• HUGO Chromosome 22

• Children's Hospital of Philadelphia (Chromosome 22 Disorders)

• Sanger Center. Studying Chromosome 22

• HUGO Chromosome X

• HUGO Chromosome Y

MISCELLANEOUS GENETIC LINKS

• Canadian Directory of Genetic Support Groups

• Canadian Organization for Rare Disorders

• Chromosome Help Station

• Rainbow Families, a site that offers a great e-mail list for families who have children with trisomies

• Chromosome Deletion Outreach

• Valentine APAC - Association de Porteurs d'Anomalies Chromosomiques

• Genetic Alliance Helps new groups form, and directs you to appropriate support groups

• National Organization for Rare Disorders Useful, searchable database of rare disorders. Also offers parent matching registry

• The Genetic Catalogue - helps you find information on specific inherited disorders and syndromes.

• GENECLINICS.org

• GENEINFO Genetic Information and Patient Services, Inc (GAPS)

• Widesmiles Cleft Lip & Palate Resource Great Resource for Parents dealing with cleft issues...has a great on-line discussion list

• Mothers United for Moral Support Offers a newsletter to families, matching of over 1700 disorders

• Contact a Family UK support group

• Genetic Disease Information

• March of Dimes

• Healthlink US Genetic sites

• OMIM searchable disease database

• MEDLINE - NLM - search for journal articles

• Exceptional Parent Magazine

• Special Child Free On-Line Magazine

• Family Village, resource for parents of special children. Have a message board you can post to!

• National Down Syndrome Society

• Genetics Science Learning Center

• DNA Learning Center

• Genetic Disorders and Birth Defects: Sri Lanka Collection

• American Epilepsy Society

• Epilepsy Canada

• Klinefelter Syndrome & Associates

• PEDIANET

• PAGER info on gastroesophageal reflux

• Sticklers Syndrome

• Genetic Syndrome Support Groups on-line

• Human Genome Project Information

• Tokyo Medical College Hospital

• Our Kids--For parents of Special Needs Children, have great discussion list

• Office of Rare Diseases

• Rare Genetic Diseases in Children

• Genetics Education Centre

• Genetic Conditions/Rare Conditions Support & Information page

• Rare Chromosome Disorder Support Group

• Special Needs Family Friendly Fun

  SUPPORT RESOURCES FOR LOSS

  For those of you who have experienced a loss through miscarriage or death of a child. I hope these links will help.

• Miscarriage Support & Information Resources

• Miscarriage: Surviving Pregnancy Loss

• Coping With a Miscarriage

• Christian Miscarriage Support Group

• Miscarriage - A Significant Loss

• The Miscarriage Page

• Miscarriage Informational Links:

• Grief Related To Pregnancy And Infant Death

• Hygeia Foundation for Perinatal Loss and Bereavement

• Mothers in Sympathy and Support

• A Heartbreaking choice; for families who have chosen to interrupt their pregnancies after poor prenatal diagnosis

 Use Paypal to pay MEMBERSHIP DUES, or for Canadian or International Donations ONLY.

USA members for DONATIONS Please forward a cheque or money order to our US HEAD OFFICE so that you can obtain a tax receipt.

  US Head Office - for US donations: Chromosome 22 Central, c/o Murney Rinholm, 7108 Partinwood Drive, Fuquay-Varina, North Carolina, 27526  USA, tel (919) 567-8167, EMAIL: bgr@nc.rr.com

  Latin America / Spanish inquiries - Laura Munoz, Robinson Crusoe 1209, Las Condes - Santiago, Chile tel: 02-3251262 EMAIL: lauramuno@hotmail.com