CHROMOSOME 22 CENTRAL 
SUPPORT FOR ALL CHROMOSOME 22 RELATED DISORDERS 

We are all about connecting! 
Click here for an online membership form to JOIN US!  
Registered members receive our newsletter and can choose to be listed in our parent registry.

C22C is a parent driven group with more than 1000 members in 45+ countries. 

HOME | EVENTS | RESEARCH | NEWS | LINKS | PRIVACY POLICY | DISCLAIMER

Join our main support list

CLICK HERE FOR MORE E-MAIL LISTS (choose from, c22cnews only, infant/pregnancy loss, caregivers of adults, Spanish

MESSAGE BOARDS

• Trisomy 22 and Rare C22 Disorders

• Cat Eye Syndrome 

• 22q Deletions

FACEBOOK GROUP

MEMBERSHIP FORM

C22C INTERNATIONAL PARENT CONTACTS

LEARN ABOUT

• Chromosome 22 Central

• 22q11 Deletion Syndrome (DiGeorge Syndrome, Velocardiofacial Syndrome)

• Microduplication 22q11 Syndrome

• The 11/22 Translocation (Emanuel Syndrome, partial trisomy 11/22)

• 22q13 Deletion Syndrome (Phelan-McDermid Syndrome)

• Cat Eye Syndrome

• Complete or Full Trisomy 22

• Mosaic Trisomy 22

• Chromosome 22 Ring

• Monosomy 22 Mosaicism 

• Unique Chromosome 22 Disorders

• Books

 NEWSLETTERS

• NOVEMBER 2006
• FEBRUARY 2007 
• MAY 2007 
• SEPTEMBER 2007
• DECEMBER 2007 
• MAY 2008

DOWNLOAD A .PDF COPY OF OUR BROCHURE - SPREAD THE WORD!

Chromosome 22 Central Inc. is a registered Canadian Non-Profit Organization 
and Registered Charity BN# 86009 3665 RR0001, and a Registered US Corporation with Non-Profit Status

JOIN BY MAIL or E-MAIL SUBMISSION

You may join our group by printing and mailing our membership form (link below, requires Adobe Reader - pdf format) 

Please read and acknowledge our Notice of Privacy Rights before submitting your information.  

You may also register on-line by email form. 
Just click here.

You may choose to pay the membership fees listed to receive our printed newsletter (and pay by cheque to the CANADIAN OFFICE if mailing or Paypal if using email submission). Free registrations will enjoy all benefits of our group, except the printed newsletter. 

CHROMOSOME 22 CENTRAL
NOTICE OF PRIVACY RIGHTS

• THIS NOTICE DESCRIBES HOW INFORMATION ABOUT YOU MAY BE USED AND DISCLOSED. 
  PLEASE REVIEW IT CAREFULLY.
  C22C Inc. is a voluntary organization which shares information provided by members, with other registered members, for the purpose of supportive networking, or if families are interested in participating in research studies. Members of C22C include families and interested professionals.
  

• Only members who select to be added to our network database or be published in our newsletter will have their confidential information shared between registered members. 
  

• Members who choose to have their personal information published in the newsletter or family networking lists accept that the newsletter is distributed through hard copy mail and a closed e-mail list through Yahoogroups (no access to unregistered members) and understand that no method of electronic transmission is 100% secure. 
  

• If members indicate a desire to accept contact for research purposes on the membership form, their confidential information may be shared with professional research institutes. Members if contacted are under no obligation to participate in any proposed studies.
  

• C22C Inc. will not provide confidential information to requests made by outside parties without the direct signed consent of the individual, or in most cases, the consent of BOTH parents of the individual.
  

• Registered members have the right to change their personal information at any time by contacting the head office of C22C Inc. 237 Kent Avenue, Timmins, Ontario, P4N 3C2 or by emailing a815@c22c.org.
  

• C22C Inc. does NOT sell or provide confidential information for benefit or gain. No information is exchanged about registered members except in the above noted manner.
  

• Registered members have the right to revoke their registration at anytime, and have all confidential information on them destroyed in an acceptable manner.
  

• C22C Inc. has the right to revise the terms of this policy and members have the right to be notified in the event of any such change.

I have read, understand and accept the above noted terms:
link for printed Membership Form

I do not accept the above terms, please return to homepage

Effective date: July 9, 2003

US/CANADIAN FAMILIES: 1 year/$15, 2 years/$27, 3 years/$35

PROFESSIONALS and INTERNATIONAL FAMILIES: 1 year/$18, 2 years/$34, 3 years/$45  

By submitting this form you agree that the information you have provided is true to the best of your knowledge and you are agreeing to share this information with other members as indicated above.

Further donations are gratefully accepted.    Please feel free to submit a narrative and/or photo of your child to be featured in a future newsletter.

 Use Paypal to pay MEMBERSHIP DUES, or for Canadian or International Donations ONLY.

USA members for DONATIONS Please forward a cheque or money order to our US HEAD OFFICE so that you can obtain a tax receipt.

Head Office - for ALL inquiries: Chromosome 22 Central, c/o Stephanie St-Pierre, 237 Kent Avenue, Timmins, Ontario, Canada P4N 3C2 
tel/fax: (705) 268-3099, EMAIL:  steph.stpierre@gmail.com

US Head Office - donations only: Chromosome 22 Central, c/o Murney Rinholm, 7108 Partinwood Drive, Fuquay-Varina, North Carolina, 27526  USA, 
tel (919) 567-8167, EMAIL: bgr@nc.rr.com